Alice Wong's latest collection, "Disability Intimacy: Essays on Love, Care, and Desire," invites readers to explore and understand intimacy through the eyes of people with disability. Arriving on April 30, this highly anticipated publication presents writing and drawings from the disability community spanning a spectrum of emotional depth and intensity.
Wong highlighted that intimacy goes beyond physical closeness; it includes the internal bonds we form with others, communities, and the broader world. By delving into themes like caregiving, community, access, and friendship, "Disability Intimacy" pushes back against traditional views of intimacy, encouraging readers to explore its various forms.
Wong's journey in creating this anthology began with a poignant realization: the lack of substantial resources on disability intimacy. Confronted with shallow search results and commonplace stereotypes, Wong embarked on a mission to redefine intimacy within the context of disability. In essence, this book is a compilation that glorifies the multifaceted nature of relationships.
Tenderness, a recurring motif throughout the anthology, is a testament to its contributors' care and dedication. With meticulous attention, Wong delicately curated each piece, recognizing the trust those who shared their stories placed in her. In a world where vulnerability is often perceived as a weakness, "Disability Intimacy" embraces it as a profound act of connection.
Amidst the essays, readers will find poems and a conversation between two disabled people of color discussing the redefinition of intimacy, ableism, and their reservations about certain aspects of intimacy. This addition provides a refreshing and impactful twist to the anthology format.
"Disability Intimacy" invites readers to explore the myriad forms of connection that enrich our lives. Intimacy is a diverse phenomenon and can take many forms, including loving relationships, friendships, or self-realization, and we should each celebrate these things in our lives. As Wong writes, intimacy is a dialogue, a form of communication that breaks the barriers of space and time.
In a candid revelation, Wong shared a deeply personal aspect of her life: her journey with romantic relationships. Despite the influence of societal expectations and personal feelings of shame, Wong boldly accepted her longing for intimacy without reservation. She said she created a clear image of the gap between the desire and the strength to resist the condition of an individual's beauty and worth.
Wong was diagnosed with muscular dystrophy during childhood. Then, two years ago, she had some severe health problems that made it hard for her to talk, swallow, or eat without help. Weeks in the ICU tested her resolve, yet she remained determined to keep moving forward. Wong described adjusting to reality as daunting, requiring extensive resources and support.
Despite these struggles, Wong found herself at a point of clarity and contentment. Although uncertainty remains, she has decided to cherish each moment and prioritize self-care. According to her, death remains a constant companion, but she aspires to face it with the satisfaction of a life lived authentically with love.
"Disability Intimacy: Essays on Love, Care, and Desire" is now available for order. It invites readers to delve into a world of empathy, connection, and understanding.
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